On-line First

J Rheum Dis

Published online February 23, 2024

© Korean College of Rheumatology

Quality indicators for care in juvenile idiopathic arthritis

Hend Alkwai, M.D.1 , Reem Alshammari, M.D.2 , Reem Abdwani, M.D.3 , Muna Almutairi, M.D.4 , Raed Alzyoud, M.D.5 , Thaschawee Arkachaisri, M.D.6,7 , Sumaira Farman, M.D.8 , Soad Hashad, M.D.9,10 , Rebecca James, M.D.11 , Khulood Khawaja, M.D.12 , Hala Lotfy, M.D.13 , Swee Ping Tang, M.D.14 , Soamarat Vilaiyuk, M.D.15 , Sulaiman M Al-Mayouf, M.D.2,16

1Department of Pediatrics, College of Medicine, University of Ha’il, Ha’il, 2Department of Pediatric Rheumatology, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia, 3Department of Child Health, College of Medicine and Health Sciences, Sultan Qaboos University, Muscat, Oman, 4Department of Pediatrics, Adan Hospital, Hadiya, Kuwait, 5Pediatric Allergy, Immunology and Rheumatology Division, Queen Rania Children’s Hospital, Amman, Jordan, 6SingHealth Duke-NUS Paediatrics Academic Clinical Program, Duke-NUS Medical School, Singapore, 7Rheumatology and Immunology Service, Division of Medicine, KK Women’s and Children’s Hospital, Singapore, 8Department of Rheumatology, National Hospital Postgraduate Training Institute and Medical Center, Lahore, Pakistan, 9Department of Rheumatology, Tripoli Children Hospital, 10Department of Rheumatology Department, University of Tripoli, Tripoli, Libya, 11Department of Paediatric Rheumatology, Queensland Children’s Hospital, Queensland, Australia, 12Department of Pediatrics, Shaikh Shakhbout Medical City, Abu Dhabi, United Arab Emirates, 13Department of Pediatrics, Cairo University, Cairo, Egypt, 14Department of Paediatrics, Selayang Hospital, Ministry of Health Malaysia, Selangor, Malaysia, 15Division of Rheumatology, Department of Pediatrics, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand, 16Department of Pediatrics, College of Medicine, Alfaisal University, Riyadh, Saudi Arabia

Correspondence to : Sulaiman M Al-Mayouf, https://orcid.org/0000-0003-0142-6698
Department of Pediatric Rheumatology, King Faisal Specialist Hospital and Research Center, Al Mathar Ash Shamali, Riyadh 11564, Saudi Arabia. E-mail: mayouf@kfshrc.edu.sa

Received: October 18, 2023; Revised: January 17, 2024; Accepted: February 9, 2024

This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Objective: To develop a set of quality indicators (QIs) tailored to improve the care provided to children with juvenile idiopathic arthritis (JIA) in countries across the Asia-Pacific region.
Methods: An adaptation of the Research and Development Corporation (RAND)/University of California, Los Angeles (UCLA) Appropriateness Method (RAM) was used. An initial set of 32 QIs was developed after a systematic search of the literature. These were presented to members of a Delphi panel composed of pediatric rheumatologists and other relevant stakeholders from the Asia Pacific League of Associations for Rheumatology Pediatric Special Interest Group (APLAR-Pediatric SIG). After each round, the mean scores for validity and reliability, level of disagreement, and median absolute deviation from the mean were calculated.
Results: The panelists were presented with 32 QIs in two rounds of voting, resulting in the formulation of a final set of 22 QIs for JIA. These QIs are categorized within six domains of care, including access to care, clinical assessment, medications and medication monitoring, screening for comorbidities, counseling, and self-efficacy and satisfaction with care.
Conclusion: These QIs have been developed to evaluate and improve the quality of care provided to children with JIA, aiming to enhance health outcomes and ensure that healthcare services are tailored to the unique needs of this patient population.

Keywords Juvenile idiopathic arthritis, Quality indicators, Outcome, Asia-Pacific region

Article

On-line First

J Rheum Dis

Published online February 23, 2024

Copyright © Korean College of Rheumatology.

Quality indicators for care in juvenile idiopathic arthritis

Hend Alkwai, M.D.1 , Reem Alshammari, M.D.2 , Reem Abdwani, M.D.3 , Muna Almutairi, M.D.4 , Raed Alzyoud, M.D.5 , Thaschawee Arkachaisri, M.D.6,7 , Sumaira Farman, M.D.8 , Soad Hashad, M.D.9,10 , Rebecca James, M.D.11 , Khulood Khawaja, M.D.12 , Hala Lotfy, M.D.13 , Swee Ping Tang, M.D.14 , Soamarat Vilaiyuk, M.D.15 , Sulaiman M Al-Mayouf, M.D.2,16

1Department of Pediatrics, College of Medicine, University of Ha’il, Ha’il, 2Department of Pediatric Rheumatology, King Faisal Specialist Hospital and Research Center, Riyadh, Saudi Arabia, 3Department of Child Health, College of Medicine and Health Sciences, Sultan Qaboos University, Muscat, Oman, 4Department of Pediatrics, Adan Hospital, Hadiya, Kuwait, 5Pediatric Allergy, Immunology and Rheumatology Division, Queen Rania Children’s Hospital, Amman, Jordan, 6SingHealth Duke-NUS Paediatrics Academic Clinical Program, Duke-NUS Medical School, Singapore, 7Rheumatology and Immunology Service, Division of Medicine, KK Women’s and Children’s Hospital, Singapore, 8Department of Rheumatology, National Hospital Postgraduate Training Institute and Medical Center, Lahore, Pakistan, 9Department of Rheumatology, Tripoli Children Hospital, 10Department of Rheumatology Department, University of Tripoli, Tripoli, Libya, 11Department of Paediatric Rheumatology, Queensland Children’s Hospital, Queensland, Australia, 12Department of Pediatrics, Shaikh Shakhbout Medical City, Abu Dhabi, United Arab Emirates, 13Department of Pediatrics, Cairo University, Cairo, Egypt, 14Department of Paediatrics, Selayang Hospital, Ministry of Health Malaysia, Selangor, Malaysia, 15Division of Rheumatology, Department of Pediatrics, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand, 16Department of Pediatrics, College of Medicine, Alfaisal University, Riyadh, Saudi Arabia

Correspondence to:Sulaiman M Al-Mayouf, https://orcid.org/0000-0003-0142-6698
Department of Pediatric Rheumatology, King Faisal Specialist Hospital and Research Center, Al Mathar Ash Shamali, Riyadh 11564, Saudi Arabia. E-mail: mayouf@kfshrc.edu.sa

Received: October 18, 2023; Revised: January 17, 2024; Accepted: February 9, 2024

This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.

Abstract

Objective: To develop a set of quality indicators (QIs) tailored to improve the care provided to children with juvenile idiopathic arthritis (JIA) in countries across the Asia-Pacific region.
Methods: An adaptation of the Research and Development Corporation (RAND)/University of California, Los Angeles (UCLA) Appropriateness Method (RAM) was used. An initial set of 32 QIs was developed after a systematic search of the literature. These were presented to members of a Delphi panel composed of pediatric rheumatologists and other relevant stakeholders from the Asia Pacific League of Associations for Rheumatology Pediatric Special Interest Group (APLAR-Pediatric SIG). After each round, the mean scores for validity and reliability, level of disagreement, and median absolute deviation from the mean were calculated.
Results: The panelists were presented with 32 QIs in two rounds of voting, resulting in the formulation of a final set of 22 QIs for JIA. These QIs are categorized within six domains of care, including access to care, clinical assessment, medications and medication monitoring, screening for comorbidities, counseling, and self-efficacy and satisfaction with care.
Conclusion: These QIs have been developed to evaluate and improve the quality of care provided to children with JIA, aiming to enhance health outcomes and ensure that healthcare services are tailored to the unique needs of this patient population.

Keywords: Juvenile idiopathic arthritis, Quality indicators, Outcome, Asia-Pacific region

JRD
Apr 01, 2024 Vol.31 No.2, pp. 108~96
COVER PICTURE
Schematic diagram for mechanism of botanical drugs and ingredients for health functional food for treatment of OA. OA: osteoarthritis, IL: interleukin, TNF-α: tumor necrosis factor-alpha, PGE2: prostaglandin E2, MMP: matrix metalloproteinase, VAS: visual analogue scale. (J Rheum Dis 2024;31:68-78)

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